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KANSAS CITY, Mo. — Tomas Young has been fighting for the last nine years: fighting his government, fighting the Veterans Administration and fighting his own deteriorating body.
But soon the struggle will be over. The Kansas City man who was paralyzed from the chest down by a sniper’s bullet during the Iraq War is now in hospice care and preparing to die, The Kansas City Star reported.
Sometime in the next few weeks, after he has said all his goodbyes, he intends to refuse nourishment, water and life-extending medication. He expects his 33-year life to be over a few days after that.
“Because I’m tired,” Young explained this week from his bed. “I’m sick and tired of being sick and tired.”
Young is mostly confined to his bed. His colon was removed in November, and he doesn’t eat solid food. A pump that he controls provides anti-pain drugs through a tube into his chest. He gets nauseated and tires easily.
Those closest to Young, including his wife and his mother, support his decision. They want Young’s story to draw attention to America’s attitudes toward death and dying as well as to the continuing price being paid for the Iraq War, which began 10 years ago this week. American troops left in 2011.
In what may be Young’s final political gesture, the activist this week issued an open letter to former President George W. Bush and Vice President Dick Cheney on behalf of “the human detritus your war has left behind, those who will spend their lives in unending pain and grief.” The letter is posted at www.truthdig.com.
Young is accustomed to expressing strong opinions about the war. He was interviewed on “60 Minutes” and was the subject of the 2007 documentary “Body of War” produced by Phil Donahue. Musician Eddie Vedder of Pearl Jam was inspired by Young to compose songs for the film.
Young is a graduate of Winnetonka High School, class of ’98, and after the terrorist attacks of Sept. 11, 2001, he decided to join the Army.
“I enlisted to go to Afghanistan because I felt that was, quote-unquote, the right war, to go after the people that attacked us,” he said.
Young was distraught to be sent instead to Iraq, a conflict he felt was not justified. He said an Army chaplain told him he would feel better once he got to Iraq and started killing Iraqis.
Young was in-country less than a week, on April 4, 2004, when he and many other soldiers were wounded while in the back of an open-air truck rushing in a rescue convoy in Sadr City outside Baghdad. He was 24.
“It was like shooting fish in a barrel,” Young later said of the sniper attack that severed his spine.
Back home and in a wheelchair, Young struggled with post-traumatic stress but became a voice against the Iraq War. “A Body of War” dealt with the congressional debate over the war resolution and took an unflinching look at Young’s daily medical trials.
Those became worse with a pulmonary embolism and stroke in 2008 that impaired his speech and arms. He was in rehab in Chicago when a kind-hearted woman who had seen the documentary began visiting him.
“I went down there to make it better for him,” said Claudia Cuellar. “I took him books and music and movies. We connected pretty quickly. I fell in love.”
Cuellar left her home in Chicago to be Young’s caregiver in Kansas City. Last spring, the two married at the Clay County Courthouse so Cuellar couldn’t be excluded by a hospital from Young’s final moments. They were already thinking about that. Things soon began to get worse when Young experienced severe abdominal pains.
There were several hospitalizations and arguments with doctors over pain medication. Young left a Veterans Administration hospital in October against medical advice. He and Cuellar were considering hospice care when doctors at a private hospital suggested a colostomy.
It was major surgery, but the couple thought it would buy some time and quality of life. But the pain returned.
Now Cuellar feeds her husband a liquid diet through a tube and grinds up pills when he feels nauseated.
Leaving the bed is too much an effort, so Young lays in a darkened room with a wide-screen TV and Bob Marley posters on the wall. Elsewhere in the house in Kansas City, North, is Pearl Jam memorabilia, photos of Young and Cuellar, and books on Tibetan Buddhism, her religion.
Knocks on the front door signal the arrival of a visiting caregiver or the delivery of meds. A happy dog named Buddy pads around with a tennis ball in his mouth.
Cuellar doesn’t cook anymore, lest the aroma cause her husband to think about food. Watching TV is hard because every other commercial seems to be about food.
After the last surgery did not make things better, Young and Cuellar again turned to the concept of palliative care.
“Finally I decided that ... watching my body deteriorate, I was going to go into hospice care and eventually stop eating and drinking,” said Young.
Cuellar said it wasn’t that easy “getting off the medical merry-go-round where they want you to do more and more procedures and take more and more drugs. They make you feel like you’re giving up, like there’s something wrong.”
To be accepted into hospice one technically has to have a terminal condition. Cuellar and Young prevailed when he was ruled to have an “inability to thrive” and was accepted by Crossroads Hospice.
Young said his choice was rational.
“When you feel like you’ve had enough with life you can choose to go out your own way,” he said. “You don’t have to struggle through every day just to make it because you’re expected by society to endure until you die naturally or are murdered.”