Families link burn pits to health woes, debt
Posted : Monday Feb 6, 2012 13:36:19 EST
Army Reserve wife Rosie Torres, 38, stood in line Jan. 19 at a Texas Health and Human Services office to apply for assistance with her mortgage, bills and groceries.
Mounting debt related to her husband’s medical bills has pushed the couple into arrears; between insurance deductibles, house payments and overages, they owe more than $55,000.
LeRoy Torres, 39, a Reserve captain and former Texas state trooper, was assigned to Joint Base Balad, Iraq, in 2008 and believes exposure to the camp’s open-air burn pits left him with debilitating respiratory problems. He can’t walk long distances, perform daily tasks or even roughhouse with his kids.
But although he can’t work full time, between his drill pay and Rosie’s part-time pay, they make too much to qualify for a grant.
“My husband actually said that with our insurance, we’d be better off if he’s not around,” Rosie Torres said. “I don’t want to hear that. That’s not what our family needs.”
The Torreses are among the many National Guard, reserve and active-duty families awaiting military medical evaluations and possible retirement or separation.
Doctor teams with advocacy group to study burn-pit exposures
An allergy and asthma specialist at New York’s Stony Brook University Medical Center is conducting a study of veterans whose health problems may be linked to burn pits and other environmental exposures in Iraq and Afghanistan.
The research, led by Dr. Anthony Szema, the school’s assistant professor of medicine and surgery, will analyze data provided by veterans and service members to the advocacy group Burn Pits 360, examining symptoms, diagnoses, place and date of assignment, age, gender and other data.
Burn Pits 360 hopes the results will help the Veterans Affairs and Defense departments develop health care models to treat illnesses related to environmental exposures.
“This study will provide vital information to doctors and researchers that will help properly diagnose and treat the vast array of medical complications arising from these exposures,” Burn Pits 360 spokesman and former Air Force Staff Sgt. Daniel Meyer said in a statement.
Veterans interested in taking part can enroll through www.burnpits360.org. They will be asked to provide proof of service, such as a DD 214 or enlistment papers, and a consent form.
To date, 292 veterans have registered on the site, which organizers hope will someday serve as a basis for a nationwide registry of veterans exposed to open-air burn pits.
They also are part of a smaller cadre that has incurred massive medical bills resulting from illnesses they say are tied to pollutants — namely burn pits or fine particulate matter in desert dust — they inhaled while serving in Iraq and Afghanistan.
As non-activated reservists, they often cobble together health care, relying on the Veterans Affairs Department, their work insurance and savings accounts to pay for care.
Quite often, that means going into debt.
“I never thought we’d be in this situation,” said Maria Baca, whose husband, New Mexico Air National Guard Master Sgt. Jessey Baca, still has a civilian job but has outstanding bills totaling $57,000.
About 26,000 troops are in the military disability evaluation process at any given time, according to an Army report released in January. The waiting time for a decision on the 18,000 soldiers in the process is between 373 to 400 days, the report states.
The wait for medical discharges is especially difficult for families like the Torreses and the Bacas, whose husbands were primary breadwinners and aren’t earning full-time military or civilian pay.
Baca, 52, served two tours at Balad. He’s been diagnosed with emphysema, sleep apnea, chronic cough and mesothelioma.
When he went to VA for treatment, he felt he wasn’t getting solutions, so he turned to a doctor at Vanderbilt University in Tennessee who has diagnosed more than 40 Iraq and Afghanistan veterans with a rare condition known as constrictive bronchiolitis. The consultation with pulmonologist Dr. Robert Miller put them further in debt.
“The gap between VA and [the Defense Department] for the reserve component of the military’s wounded must be bridged,” Rosie Torres said. “Too many people are losing their homes, their life savings and their hope.”
VA says it treats veterans for their known symptoms and is working to understand the unexplained health problems of some Iraq and Afghanistan vets.
But the process takes research and time, said Dr. Terry Walters, deputy chief consultant of VA’s environmental health strategic health care group.
An Institute of Medicine report released in November said the existing data cannot prove whether long-term health effects are likely to result from exposure to emissions.
Miller’s diagnosis of constrictive bronchiolitis is controversial. It gives patients a name for their disease but no relief — it’s incurable — and requires an invasive lung biopsy to detect.
“If a veteran comes in and they have demonstrated shortness of breath and it has an impact on their functioning, they don’t need a lung biopsy to prove they have a disease. Our concern is biopsies are being done on the outside for financial reasons,” Walters said.
In a letter to the New England Journal of Medicine, physicians at Brooke Army Medical Center in San Antonio challenged Miller’s findings, reported in the journal in July 2011.
“Constrictive bronchiolitis is characterized by relentlessly progressive disease, lack of response to treatment and severe disability and it is often fatal … although clinicians should remain diligent and aware of the possibility of constrictive bronchiolitis, the data do not establish a convincing link,” wrote physicians Dr. Michael Morris and Col. Lisa Zacher.
Miller, who has diagnosed 45 cases of constrictive bronchiolitis in troops, defends his work, saying he initially was reluctant to biopsy seemingly healthy service members.
But their symptoms indicated a “hidden impairment,” Miller said. Their tissue slides show “lacy black pigment” on the sample surfaces — evidence of constrictive bronchiolitis, he said.
“These are often elite athletes — soldiers who are now limited, disabled,” Miller said. “And they aren’t getting the compensation they deserve.”
Veterans say they aren’t seeing Miller or other civilian physicians to get higher disability ratings. Instead, they say, they seek peace of mind, regardless of cost.
In February, clinicians, researchers, troops, veterans and family members will meet at Stony Brook University Medical Center in New York for a first-ever symposium on lung health among Iraq and Afghanistan veterans. Sponsored in part by the advocacy group Burn Pits 360, for which Rosie Torres is executive director, the meeting aims to call attention to this cohort’s health and welfare issues.
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